Practical Guidance
When You're on Your Own
A practical, evidence-informed guide for managing CRPS and AMPS at home — while you wait for a diagnosis, between appointments, or when specialist care isn't accessible.
This guide does not replace medical care. It is intended as supplementary self-management information while you work toward a diagnosis or treatment plan. Always discuss changes with a healthcare provider when possible.
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Keep the affected limb uncovered when possible
Tight clothing, socks, or bandages can increase sensitization. Loose, seamless fabrics (bamboo or modal) reduce irritation. Avoid elastic waistbands or cuffs directly over the painful area.
Temperature regulation
CRPS/AMPS limbs often can't self-regulate temperature. Keep a small fan nearby for overheating, and use a lukewarm (not hot or cold) water soak to calm flares. Avoid ice — it often worsens symptoms. Electric blankets should be used cautiously and never directly on skin.
Gentle moisturizing
Dry or cracked skin over a sensitized limb increases nerve firing. Use a fragrance-free moisturizer (like CeraVe or Vanicream) in slow, gentle strokes — always moving away from the body (distal to proximal). This direction can help lymphatic flow.
Elevation for swelling
If the limb swells, elevate it above heart level for 20–30 minutes, several times a day. Use pillows rather than compressive wraps unless your physical therapist recommends otherwise.
