Our Mission
Making Invisible Pain Visible.
We Are a Movement for Everyone Living with Chronic Pain
Invisible Pain exists to create lasting, measurable improvements in the lives of people living with chronic pain and invisible illnesses. Whether someone lives with AMPS, CRPS, fibromyalgia, EDS, POTS, dysautonomia, or any other chronic pain condition. We all share a common experience: pain that is real but invisible, too often dismissed, and a healthcare journey that can feel isolating and overwhelming.
We have a special focus on childhood chronic pain because earlier recognition and appropriate intervention may improve long-term outcomes for many children. A child might wake up one morning unable to walk, or experience excruciating pain from something as gentle as a breeze. Everyday life — going to school, playing with friends, sleeping — becomes a battle. And yet, because there are no visible injuries, these children are too often not believed.
But this isn't just about children. Adults deserve the same compassion, the same support, and the same access to trusted information. We are all in this together.
"Imagine your child screaming in pain — and being told by doctors that nothing is wrong. Chronic pain is real, it is devastating, and it is happening to children and adults every single day."
— Invisible Pain Community
Years of misdiagnosis before answers
Told the pain is 'in their head'
Pulled from school, work, and everyday life
Families bankrupted by medical costs
Isolation, anxiety, and loss of identity
What We Do
Our Core Mission
Create awareness
Advance prevention
Improve support
Improve education
Improve healthcare navigation
Improve quality of life
Support research
Strengthen communities
Build trust
How We Fight
Our Strategic Pillars
The four goals that guide everything we do.
Awareness & Prevention
We make invisible pain visible and advance earlier recognition, because catching chronic pain sooner may improve long-term outcomes for many people of all ages.
Education
We provide evidence-informed, easy-to-understand educational resources for families, schools, doctors, friends, and the public.
Support & Community
We build safe, compassionate spaces so no one — child, adult, or family — ever feels alone in their journey with chronic pain.
Research & Advocacy
We support research, elevate patient priorities, and advocate for better healthcare access, school and workplace accommodations, insurance reform, and public understanding for everyone affected by chronic pain.
What Guides Us
Our Core Values
Compassion
Integrity
Evidence-Informed
Innovation
Collaboration
Accessibility
Accountability
Continuous Improvement
Our Boundaries
What We Will Never Become
Trust is earned through accuracy, transparency, and consistency. These are the lines we will never cross, no matter how much pressure or opportunity exists. They protect the people we serve.
A diagnosis-specific organization
A political organization
A replacement for healthcare professionals
A source of misinformation
A fear-based fundraising organization
A business that puts profit ahead of people
An organization that exaggerates scientific evidence
An organization that stops improving
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