Invisible Pain Foundation

Our pain
is real.
Our voices matter.

Millions of children live with chronic pain that nobody can see — and too few believe.

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Legal

Privacy Policy

Last updated: July 2026

1. Introduction

Invisible Pain Foundation ("Invisible Pain," "we," "us," or "our") is committed to protecting your privacy. This Privacy Policy explains what information we collect when you use our website at invisiblepain.org (the "Site"), how we use it, and the choices you have. By using the Site, you consent to the practices described in this policy.

2. Information We Collect

We collect information that you voluntarily provide when you interact with our Site:

  • Petition signatures: Your name, email address, and optional message.
  • Story submissions: Your name, email, role (e.g., parent, patient), city, state, story content, and consent to share.
  • Volunteer applications: Your name, email, city, state, preferred role, and motivation.
  • Doctor recommendations: Doctor/clinic name, location, specialty, website, phone, and your name and email as the submitter.
  • Suggestions and feedback: Your message, category, and optional email.
  • Newsletter subscriptions: Your email address.
  • Donations: Payment details are processed securely by our payment provider (Wix Payments). We receive your name, email, and transaction amount, but we do not store your credit card information.
  • Usage data: We collect anonymized analytics data such as page views, button clicks, and general usage patterns to improve the Site.

3. How We Use Your Information

  • To process and acknowledge your petition signature, story, volunteer application, or doctor recommendation.
  • To send you confirmation emails related to your submissions.
  • To notify our administrative team when new submissions are received.
  • To send newsletter emails if you subscribe (you can unsubscribe at any time).
  • To process donations and send receipts.
  • To improve our content, services, and user experience through analytics.
  • To comply with legal obligations.

4. Cookies and Tracking

We use cookies and similar technologies to enhance your browsing experience, analyze Site traffic, and understand how visitors use our Site. A cookie notice is displayed on your first visit, allowing you to acknowledge our use of cookies. You can disable cookies in your browser settings, but some features of the Site may not function properly without them.

5. Third-Party Services

We use the following third-party services that may collect and process your data:

  • Base44: Our website hosting and database platform. Data you submit is stored on Base44's servers.
  • Wix Payments: Our payment processing provider for donations. Wix Payments handles all payment card information in accordance with PCI-DSS standards. We do not see or store your full card details.
  • Analytics tools: We use analytics to understand how the Site is used. This data is anonymized where possible.

Each third-party service has its own privacy policy governing how they handle your data. We encourage you to review their policies.

6. Data Retention

We retain your information for as long as necessary to fulfill the purposes described in this policy, comply with legal obligations, resolve disputes, and enforce our agreements. If you request deletion of your data, we will remove it from our active systems within a reasonable timeframe, except where retention is required by law.

7. Your Rights

Depending on your location, you may have the following rights regarding your personal data:

  • Access: Request a copy of the personal data we hold about you.
  • Correction: Request that we correct inaccurate or incomplete data.
  • Deletion: Request that we delete your personal data.
  • Opt-out: Unsubscribe from newsletters at any time using the unsubscribe link in our emails.
  • Withdraw consent: Withdraw any consent you previously gave us for processing your data.

To exercise these rights, contact us at contact@invisiblepain.org.

8. Children's Privacy

Our Site addresses topics related to childhood chronic pain, but it is not directed at children under 13 for the purpose of collecting their personal data. We do not knowingly collect personal information from children under 13. If you believe a child under 13 has provided us with personal information, please contact us and we will promptly delete it. Parents or guardians should supervise their children's use of the Site and assist with any submissions.

9. Data Security

We implement reasonable technical and organizational measures to protect your personal data from unauthorized access, loss, or misuse. However, no method of transmission over the Internet or electronic storage is 100% secure, and we cannot guarantee absolute security.

10. Changes to This Policy

We may update this Privacy Policy from time to time. Changes will be posted on this page with an updated "Last updated" date. We encourage you to review this page periodically.

11. Contact Us

If you have questions about this Privacy Policy or your personal data, please contact us at contact@invisiblepain.org. You may also review our Terms of Service and Medical Disclaimer.

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